Amy and Friends was added to “The Book of Doers.” Jayne Hughes was invited to speak at the event about the positive impact Amy and Friends has had for CS and TTD families around the globe.
RareQoL EDIRA! Let’s COCO and Celebrate the Doers 7th of November 2025.
This event signaled a transformative chapter for Inclusive Research and Patient Engagement.Pictured here are just some of the ‘Doers’.
The event brought together a diverse group of experts through experience, knowledge and skills: sharing information about their collaborative projects and the impact they are making. Doers from France Wales England Scotland Nigeria were represented at our event, both in person and online.
Demonstrating the strategies they have used in
Collaboration, Outreach and Co-creation with Outcome-focused approaches.
The ‘Doers’ are driving positive change in equality, diversity and inclusion,
in health education service improvement: raising the patient_voice.
