Rare Disease Clinic been up and running for a year.
The multidisciplinary clinic has been up and running for 1 year. Clinic has allowed our families and CS - TTD patients to be seen by a wonderful team who specialise in CS and TTD, Dermatology, Neurology, Ophthalmology, Dentistry, Dietary and Genetics.
Amy and Friends is an integral part of the service giving feedback on the patient experience and also by providing financial assistance for patients to attend clinic. We accompany families and provide volunteers to help keep children fully entertained and supported.