• 0 24th – 28th June 2020 Cycle for Amy and Friends from Venice to Milan

    • News
    • by Administrator
    • 19-08-2019

    24th – 28th June 2020 Cycle for Amy and Friends from Venice to Milan!  Please visit www.chapeau.events.co.uk scroll down to the date and event for Amy and Friends to see more about this wonderful event!  Please email jayne@amyandfriends.org for further information.

  • 0 8th November 2019 - Gary Barlow Tribute Night

    • Events
    • by Administrator
    • 19-08-2019

    Gary Barlow tribute night 8th November at the Mold Rugby Club, Chester Road, Mold, North Wales, CH7 1UF, UK

  • 0 St Thomas’ Hospital

    • News
    • by Administrator
    • 01-04-2019

    NHS England funded the Cockayne Syndrome -Trichothiodystrophy (CS-TTD) multidisciplinary clinic in February 2019 to assist consultants in caring for their CS-TTD patients. It provides services including Dermatology, Neurology, Ophthalmology, Dentistry, Dietitiary and Genetics. It is based at St Thomas’ Hospital in London and diagnostic tests are led by Professor Alan Lehmann from the University of Sussex and the clinical lead for the service is Dr Shehla Mohammed . Amy and Friends is an integral part of the service giving feedback on the patient experience of the service and also by providing financial assistance for patients to attend the clinic.

  • 0 February 2019 - St Thomas’ Hospital London

    • News
    • by Administrator
    • 14-02-2019

    February 2019 - St Thomas’ Hospital London working in conjunction with Amy and Friends and NHS England opens the first multidisciplinary clinic for Cockayne Syndrome/TTD in the world!  Our biggest achievement to date!

  • 0 Amy and Friends Worldwide Annual Meeting Of Families And Specialists

    21-23rd October 2019 Amy and Friends Worldwide Annual Meeting Of Families And Specialists takes place at Carden Park Hotel, Broxton, Cheshire, CH3 9DQ   Registration Form

  • 0 Ben Hughes has been awarded the Princess Diana Award.

    • News
    • by Administrator
    • 10-09-2018

    Ben Hughes has been awarded the Princess Diana award for his outstanding contributions towards raising awareness and fundraising for Amy and Friends.  

  • 0 ANNUAL SCIENTIFIC / FAMILY CONFERENCE 2018

    Amy and Friends 11th annual conference took place at Carden Park Hotel, Cheshire.  Families came together from far and wide across the world to share love, laughter, tears and valuable time making memories.

  • 0 Amy and Friends - in conjunction with Guy’s and St Thomas’ Hospital and NHS England

    • News
    • by Administrator
    • 10-09-2018

    Amy and Friends -  in conjunction with Guy’s and St Thomas’ Hospital and NHS England are beginning work in establishing a multidisciplinary clinic for children and young people who suffer from Cockayne Syndrome/TTD.  We have worked so hard over the last 7 years and are delighted with this outcome!

  • 0 White Water Rafting Event

    • News
    • by Administrator
    • 10-09-2018

    A group of wonderful crazy people are taking part in a white water rafting event in October to raise funds!  Good luck everyone! 

  • 0 The People's Projects Please Vote for Amy and Friends

    • News
    • by Administrator
    • 13-04-2018

    The People's Projects gives you the chance to decide how National Lottery funding can make a difference in your local community. The projects are revealed! Voting opens at 9am on Monday 16th April 2018. A share of up to £3 million of National Lottery funding is up for grabs. With 95 organisations shortlisted across the UK, we want you to vote for the projects you would like to receive funding. Groups are competing for up to £50,000 of funding to improve the lives of people in their communities. Please Vote for Amy and Friends by clicking the image below remember voting doesn't open until 9am Monday 16th April 2018, Thankyou!

 



 
 
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