Amy and Friends - Cockayne Syndrome Support

IMPORTANT DRUG INFORMATION

Metronidazole (also known as Flagyl® or Metrolyl®) may cause acute liver failure in children with Cockayne syndrome and should be avoided. Please alert your doctors to this.

Health professionals can obtain further information from Dr. Brian Wilson

Any further drug reactions in this patient group should be reported to the regulatory authorities in your own country.

My Time To Be Me (MTTBM) is a weekly club that provides time for siblings who live with a brother/sister (or mum/dad) that suffers from ANY severely life affecting illnes/issue or who, has sadly, passed away.

Our first club began in 2012 on the Wirral and then our second began in 2016 in Rhyl, MTTBM reduces isolation, builds
friendships, allows siblings to talk about their experiences with others in a similar situation. This helps the children and young people grow in confidence and self esteem.

MTTBM is free to attend and is for children/young people age 8-15. There are many activities that are all chosen by the young people who attend - games/projects such as music/photography/arts and crafts/much more.....

A snack tea and a drink is provided.

All volunteers are DBS checked.

MTTBM takes place at the following venues:

The Heart of Egremont
Old Egremont Mission
Guildford Street,
Egremont
Wirral
CH44 0BP

Thursday 5-7pm

St Annes Parish Church Hall
Vale Road
Rhyl
Denbighshire
LL18 2PD

Monday 5-7pm

The Daniel Owen Centre
Earl Road
Mold
Thursday 5-7pm (starting 1st Feb 2018)

Please contact info@amyandfriends.org for further information.

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