||Ryan Peter Spagnoletti was born
on 13 June 2003, 7 weeks early and weighed 1.6 kgs.
Ryan has increased muscle tone so is unable to walk or
crawl but gets around in his own way.
glasses and hearing aids and gets fed by a mic key.
Ryan is very happy and social and loves to be on his
bike or building blocks.
Ryan lives in cape town
,south africa with his parents and his brother Matthew who
also has CS.
On 10th July 2012 sweet Ryan gave up
his brave fight against this illness and flew to heaven to
join his friends. Will remain in our hearts forever until
we meet again tiger xxx
Ryan Spagnoletti, Our little friend won
his fight against Cockayne Syndrome and is now free to run and
play in heaven.