During Leons operation on his eyes further problems were found
which had to be investigated requiring further tests but the
consultant spoke to me and told me that the vision he thought Leon
could possibly have after the cataracts were removed had
Leon was diagnosed with having
cockayne syndrome type 2 in august 10 just 2 weeks before our
holiday to Florida.
He had skin biopsy/mri/ct scan done in
September 10. Leon had started suffering from convulsions and was
due to go for an appointment the week he sadly passed away to see
whether they were convulsions or something else.
Leon was a
happy baby who bought so much joy to everybody who met him. He
touched a lot of people’s hearts and will never be forgotten. He
had started nursery about 3 weeks before he passed and was
progressing in his own way. Everything he went through he was no
trouble what so ever. He was a joy to have and an inspiration to
his heartbroken mum.
Leon became a butterfly 16th October
2010 aged 6 and half months. He fell asleep peacefully next to his
mummy and big brother Thomas.