Jonty Smolenski was born in
2012 and is from Christchurch, New Zealand - he
suffers from Trichothiodystrophy (a condition
related to CS) He is a very social, fun-loving boy
with a gorgeous smile and infectious giggle!
Jonty has an older brother and younger sister who
absolutely adore him, and he reciprocates this love
back! In 2018 the whole family, together with
Jonty’s maternal grandparents, made the huge trip to
attend their first Amy and Friends conference.
They all had an amazing time meeting everyone and
sharing lots of fun, laughter and love, as well as
receiving fantastic support and understanding of the
difficult times associated with raising ‘a different
type of perfect’ child.
Despite the many challenges they face with Jonty,
the strength and determination he displays daily is
inspiration to everyone sharing his journey!