Eva was born on 20th May 2016 and lives in Brisbane, Queensland.

She has Cockayne Syndrome, but it definitely does not define her! Eva is a friend to everyone, lighting up the lives of everyone she meets through her infectious smile.

She finds pleasure in the smallest of interactions; a kiss, cuddle, tickle or just the slightest touch will make her grin from ear to ear.

Although she is small, she is so very strong, and has turned her challenges into strengths. Eva is happiest when she is with her mum and dad, whether sharing a new and exciting adventure together, or just curled up on the couch!

Eva has taught her family and friends the greatest lesson – to live every moment to its fullest and not take a second for granted.



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