Amy and Friends - Cockayne Syndrome Support Amy and Friends - Cockayne Syndrome Support
























Bertie Butterfly is kindly sponsored by Holly Lodge School for Girls, Liverpool.

 

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Our 6th annual conference was held on the weekend of Friday 21st September 2012 / Sunday 23rd September 2012 at St David’s Park Hotel, near Chester.

We had families and doctors travel from all corners of the world to join together for a weekend filled with love and support.The weekend included go cart racing for siblings and Dads, pamper session for Mums and CS kids, a Willy Wonka party with plate spinning/candy cart/puppet show/party games, a magic workshop, sensory equipment for all the kids to try, a special visit from some creepy crawly friends, doctors talks, themed party night with lots of superheros and a wonderful trip to Chester zoo!

Saying goodbye was the hardest part, but every one left with beautiful memories to last a lifetime. 





 

   
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Copyright© 2011 Amy and Friends - Cockayne Syndrome UK Charity Number: 1119746