Amy and Friends - Cockayne Syndrome Support Amy and Friends - Cockayne Syndrome Support
























Bertie Butterfly is kindly sponsored by Holly Lodge School for Girls, Liverpool.

 

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The third annual retreat took place on the weekend of the 6th-8th June 2009.

It was our biggest retreat yet, with families attending from South Africa, Australia, Germany, France, Spain as well as the UK.

  We all had an amazing time together and it was wonderful to meet friends old and new and spend time with or thinking about our beautiful children. On saturday we had time to catch up with one another and meet our new friends from around the globe.

Each family had an opportunity to have one to one time with our team of medical advisors whilst the children and their siblings were entertained by Professor Paulos who was alot of fun!! Thanks to Mike Povall and Owens Gym for arranging the Professor!!
Liverpool Museum Coach Trip 2009
  The dads, siblings and friends went out bowling whilst mums and the kids relaxed and chatted at the hotel.



On Sunday, we went to the Liverpool Museum for our trip out and had a coach provided to us by Vauxhall Motors - much thanks to them!!
Wirral Taekwondo1 2009
  We then had time to ask more questions to the doctors before getting ready for our gala evening. We were joined this year by Wirral Taekwondo who entertained the families with pattern demonstrations, sparring and some board and brick breaking!!!  
Wirral Taekwondo2 2009
Funkstar Dance Troop 2009
  Also there were Funkstar dance troop!!



Jimmy Rae and the band!
Jimmy Rae Band 2009
M&S Ladies 2009
  We also had alot of help at the event from Marks and Spencers who sold raffle tickets for a hamper and kept a close eye on our butterfly table - thanks to you!!



And of course, two of our kids - Amy and Nick got engaged at the event and brought a smile and a tear to so many eyes!!
On Monday we held our remembrance service and the children lit candles for their friends in heaven and also for their new found friends in the group. We then said our goodbyes until next time - and we can't wait for that!!!!! Thanks once again to Jeans for Genes and all the other people who made this retreat possible - you know who you are!!. Further details and pictures from the retreat will be available in our Summer Newletter - coming soon!!  
Amy & Nick 2009



   
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Copyright© 2011 Amy and Friends - Cockayne Syndrome UK Charity Number: 1119746