Bertie Butterfly is kindly sponsored by Holly Lodge School for Girls, Liverpool.

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Metronidazole (also known as Flagyl® or Metrolyl®) may cause acute liver failure in children with Cockayne syndrome and should be avoided. Please alert your doctors to this.

Health professionals can obtain further information from Dr. Brian Wilson, Any further drug reactions in this patient group should be reported to the regulatory authorities in your own country.

Forthcoming Events

In Date Order

  11th February 2017 - Annual Take That tribute night/awards ceremony combined - come along and join us for an evening of entertainment!
14th May 2017 - Superhero Run/Walk in London Regents Park - come on you can do this! Join us at 10am in Regents Park! For further details on how to register please contact us.  
July 2017 - Fun day in Central Park Wallasey - date to be confirmed. 
  18th - 20th August 2017 - 10th Annual family/scientific medical conference - available to all families who have a child/young person with Cockayne Syndrome/TTD/XRCC4 or a related disorder. Amy and Friends cover the cost of 2 nights accommodation, food, coffee, tea, cordial and all activities. If you would like any further information please don't hesitate to contact us.

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Copyright© 2011 Amy and Friends - Cockayne Syndrome UK Charity Number: 1119746