Metronidazole (also known as Flagyl® or Metrolyl®) may cause
acute liver failure in children with Cockayne syndrome and should
be avoided. Please alert your doctors to this.
professionals can obtain further information from Dr. Brian
Any further drug reactions in this patient group should be
reported to the regulatory authorities in your own country.
A - Amy and
Friends N -
Neurological and G
- Genetic disorder E
- Everyone needs L
- Love and S
Our ANGELS are our true heroes! In order to be
one of our ANGELS you agree to paying £5 per month by standing
order and to organising 1 fundraising event per year.
return for this you get to help our wonderful children and
families, receive an ANGELS certificate and are invited to an
amazing award ceremony each year. Awards will be given for -
amongst other ideas - largest fundraiser, most innovative idea,
daftest idea that worked etc!!
If you are interested in
become one of our ANGELS please contact Jayne or call -
07949 512 968