Amy and Friends - Cockayne Syndrome Support Amy and Friends - Cockayne Syndrome Support

Bertie Butterfly is kindly sponsored by Holly Lodge School for Girls, Liverpool.


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Metronidazole (also known as Flagyl® or Metrolyl®) may cause acute liver failure in children with Cockayne syndrome and should be avoided. Please alert your doctors to this.

Health professionals can obtain further information from Dr. Brian Wilson, Any further drug reactions in this patient group should be reported to the regulatory authorities in your own country.
A - Amy and Friends
N - Neurological and
G - Genetic disorder
E - Everyone needs
L - Love and
S - Support

Our ANGELS are our true heroes! In order to be one of our ANGELS you agree to paying £5 per month by standing order and to organising 1 fundraising event per year.

In return for this you get to help our wonderful children and families, receive an ANGELS certificate and are invited to an amazing award ceremony each year. Awards will be given for - amongst other ideas - largest fundraiser, most innovative idea, daftest idea that worked etc!!

If you are interested in become one of our ANGELS please contact Jayne or call - 07949 512 968

THANK YOU for your support.

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Copyright© 2011 Amy and Friends - Cockayne Syndrome UK Charity Number: 1119746